Been a while so I better catch up. First, our oldest girl came to see her and I kept my mouth shut until she walked in the door. They ended up talking and when she asked if she could come back sometime the wife said yes. The next day wife said you should have told me. Uh, you always wanted family to get back together and now you didn't want her there? Said she was embarrassed to have anyone see her. Well I hate to tell you this but it's all we have! Got her to let our nieces visit yesterday and that went real well. Saw some tears coming from the flowers and the goodbyes. My parents asked about seeing her but were fine with however she felt, knowing her situation.
Medically, her breathing has improved. She's in the middle of their test to see how long she can go without supplied oxygen. Roughly another 48 hours and that will mean the trach can be removed. Good news on that. Now the not so good. She really hasn't had much of ANY physical therapy for her arm and hand strength. Wasn't our understanding on how this place worked. Seems like our description of part nursing home is correct. Do what they have to do and leave her alone. No extra help, no therapy to speak of, came back 2 hours after they say "I'll be right back to do that". They have a gal that comes in to move her legs around on a regular basis, but she's paralyzed and won't be using them! Work on her arms! She doesn't have the strength to squeeze foam earplugs to put in her ears. After a week and a half they finally came in and tied some resistance bands to her bed to pull on. And left. I'm about ready to come unglued at someone.
Way back on day 1 the neurosurgery folks talked about fusing some vertebrae in her neck to help make it sturdier as well as reduce her arm pain. Seems like once the trach is out she can go home! I said "Hold up". First, we haven't gotten any info on what needed to be done towards being released. They gave us a list of nursing homes in our area. No way to do in-home care. When I asked about the surgery and explained what we were told the case worker made a call and said there wasn't any surgery scheduled. Well of course not! They were waiting for the trach issue to be fixed first! Guess I need to phrase my questions better.
Back over there shortly to see how much I can get answered before I have to leave for our youngest girl and get her to therapy for her ACL. For being affiliated with the other hospital there sure isn't much communication between the two.